Desperate People Do Desperate things

So I’m a little worked up this morning. Last night I saw a post on Facebook on one of the Lyme pages I follow that started up my alarm bells. A patient with Lyme Disease posted pics of a page out of the book, The Master Mineral Solution of the 3rd Millenium, by “Archbishop” Jim Humble, along with pictures of bottles of Sodium Chlorite (basically bleach) and Hydrochloric Acid, which is a very corrosive acid. So corrosive in fact, that when I worked with it back in my pharmaceutical chemist days, it had to be done under a hood. You didn’t want it on your skin, you didn’t want to breathe in the fumes, and you certainly didn’t want to digest it. But this person was actively promoting the health benefits of taking both of these liquids, in diluted form.

I read the section that came from the book that was posted in one of those pics, and I’ll share it here:

Borreliosis, Lyme Disease

 

Borreliosis and Lyme are the same disease. It is known in Europe as

Borreliosis and in the Americas as Lyme disease. In Europe, most

people still consider that it is caused by a tick and in America, it

is pretty well accepted that it comes from many different sources,

although it probably was carried by a tick originally. The well-known

story is that the disease was created in a government laboratory

near the City of Lyme, New Hampshire. There was an explosion in

the lab and the disease got spread to the local wild animals. The

ticks then spread it throughout the wild community in the U.S. and

people spread it to Europe. Anyway that is the story.

 

Since it’s been awhile since I studied proper MLA format to site my sources, I’ll add here that this was on page 96 in her copy of the book she posted, but the same entry can be found on an online version of Jim Humble’s book, on page 86, about 1/3 of the way down on the web page: http://archive.org/stream/TheMasterMineralSolutionOfThe3rdMillennium/The_Master_Mineral_of_the_Third_Millennium_djvu.txt

So does anyone want to guess why I’ve got my panties in a bunch?

Aside from the ever-so-popular governmental lab explosion conspiracy theory, the basic fact of Lyme being in Connecticut and not New Hampshire indicates that this book was not edited very well, if a basic fact like that was missed. And while on the topic of editing, what editor would actually let that last sentence stand? I haven’t seen a sentence like that since my daughter was in grade school.

But honestly the purpose of this post isn’t to rip Mr. Humble a new one. After all, I haven’t read the book. (To be quite honest, I have no interest in plunking down any money for a book that seems to have not undergone a proper edit.) It’s actually more of a commentary on the fact that there are so many Lyme disease patients, who are so horribly ill, so desperate to find relief from their symptoms, and dare I say it, an actual cure, that they are willing to try anything. The medical community really needs to step up to the plate, and start acknowledging the true depth of this and other tick borne illnesses. Insurance companies and governing bodies need to stop intimidating doctors who are trying to get their patients better with “atypical” courses of antibiotics like they are handing out heroine on the street.

Lyme patients need reputable drug companies doing real research. Until then, the chronically ill will continue to look for answers anywhere they can find them, and sometimes that results in patients being taken advantage of by charlatans selling snake oils at best, poison at worst.

Orientation

                                                  

 

Orientation was at 8.30 this morning. They wrapped things up by 10.30, but I left in a bit of a haze. Excited, but overwhelmed. 

There is so much to do before the program starts in August. Background check, drug screen, vaccinations, uniform, shoes, supplies… I was lucky enough to be gifted with a stethoscope, so that’s one less thing. As I sit here and write this, however, papers cover my kitchen table, beckoning me to get started. I need to have a cup of joe first, though, or I won’t be good for much. 

I already scheduled my appointment for my physical and vaccinations, and I have already scheduled my CPR class for “health care professionals.” That is a 5 hour course this Friday. I want to start all the boring paperwork as soon as possible though, because I tend to drag my feet with things like that. 

Most importantly though, I need to get a new script called into the pharmacy by Doc C. Although I sent an email this weekend, I also placed  call to her office. I need my symptoms to improve drastically, and it needs to happen in short order. I’m confident of my academic abilities, and that I can handle the “book stuff.” I’m more worried about my ability to handle the physical demands. The thought of which makes me wring my hands in unspoken anxiety. (Okay, I’ll admit to being a bit concerned about Pharmacology Class. It’s online, and for me that makes it all the more difficult.)

Jeez. I’m tired already.

 

Time for a change

I broke down and emailed Doc C. This particular regimen isn’t working, and I am thinking it’s the anti malarial component that is causing the trouble. I need to go on the other anti malarial that I was on for three months, and did so well, that Doc C took me off all prescription meds back in February. I haven’t been the same since. I got a wonderful glimpse of what my life could be again, what it once was, and it’s of utmost importance I regain that level of health. I need to be in the best possible shape for the long road ahead.

Every day it seems I’ve deteriorated a little more. The aches and the pain and the debilitating fatigue plague me and my whole personality is crumbling as well. I probably should not have waited this long to insist on the switch, but for one, the current anti malarial is much more travel friendly, and two, Doc C said that it was a stronger medicine.

Well, stronger or not, I have to face the fact that it is not working for me. Doc C has been so good to me, too, that I feel like I’m failing her when I don’t improve like we both want. I forget that only so much of this fight is under my own control (like diet, stress level, and how much activity I manage). I forget that the roller coaster is part of the fight. 

It’s so hard to stay positive when the fight has been so long and so hard, and when I find myself in the grips of my symptoms. But I find that a sour attitude is like quicksand, in that in only pulls you under faster. Climbing out isn’t often an option, it’s just better to avoid it altogether.

So I sit here, along the edge, and wait, because I’m not certain that I won’t inadvertently slip into the quicksand, and drown altogether.